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posted by [identity profile] techiebabe.livejournal.com at 10:29pm on 16/08/2010
If you're hypermobile have you seen a rheumy to see if you have EDS like me?

Getting that diagnosis really changed my life in that things fell into place and I can explain myself to people now, and get support. And appropriate painkillers, which include pregabalin (but amitriptyline works for others).

I have a bad back a lot these days - on waking - but after a walk with Cray and then sitting all day in my special Access To Work supportive chair, it's ok... until I go to bed all over again. Gah, days, they just repeat over and over!
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posted by [identity profile] bugshaw.livejournal.com at 07:12am on 17/08/2010
They said "hypermobility" but not EHD, gave me a book recommendation (Pain: The Science of Suffering by Patrick Wall) which was good, and that the best they could offer is pain management and life modifications.

Which works pretty well in general.
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posted by [identity profile] techiebabe.livejournal.com at 10:19am on 17/08/2010
I'll look that book up. Have I recommended any to you before? The physio one is quite good. Brad Tinkle less so. And oh! My consultant has co-written a book out on 1 Sept - I must pre order it, I'm sure anything he writes will be good :-) http://www.amazon.co.uk/Hypermobility-Fibromyalgia-Chronic-Pain-Hakim/dp/0702030058/ref=sr_1_2?ie=UTF8&s=books&qid=1282040284&sr=8-2
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